Web Directory

» Aid for Children with Tracheostomies
   National self help group operating as a registered charity. intention is to complement rather than replace statutory provisions of the medical and community services, by providing the encouragement, support and practical advice to families facing after th
   http://www.actfortrachykids.com

» Anorchidism Support Group
   Supports any person, or families of boy's, with congenital (or acquired) absence of the testes. History of the group, what they do and how to join.
   http://freespace.virgin.net/asg.uk

» Bladder Exstrophy Family Association
   Non profit making support network for families of children born with bladder/cloacal exstrophy and/or epispadias. Forum and events.
   http://www.bladderexstrophy.co.uk

» Climb Congenital Adrenal Hyperplasia UK Support Group
   Provides support for those with CAH, as well as their families, and raises funds for research. FAQs, information pack, publications, events, and stories.
   http://www.cah.org.uk

» Cushing's Syndrome Support Group (Yahoo!)
   UK forum for those with 'Cushing's Syndrome' - a hormonal disorder caused by prolonged exposure to high levels of the hormone cortisol. Yahoo! registration required.
   http://uk.groups.yahoo.com/group/Cushings/

» Directory of Self Help Groups
   Publisher of printed directory provides links to many self help and support groups.
   http://www.ukselfhelp.info/

» Edinburgh Myalgic Encephalomyelitis Self Help Group
   Edinburgh-based ME Self Help Group (MESH) for those with ME, as well as their families and carers. Events, meetings, postal library service, quarterly newsletter, plus forum and members-only pages.
   http://www.edmesh.org.uk/

» Equilibrium
   An independent, international, non-governmental organisation dedicated to improving treatment and understanding of the causes and effects of bipolar disorder ('manic-depression').
   http://www.bipolar-foundation.org

» Hop Skip and Jump
   Bristol-based day care and supervised play for children with special needs and their families. Includes facilities - serves all of South West England.
   http://www.hopskipandjump.org.uk/

» Jonny Kennedy North East
   Providing support for Epidermolysis Bullosa sufferers and their carers. News, events and community forum
   http://www.jonnykennedynortheast.org.uk/

» SIBS: For family siblings of people with special needs
   Support for brothers and sisters of those with special needs, disabilities or chronic illness. Fact sheets, workshops and conferences, plus training for professionals.
   http://www.sibs.org.uk

» Sue Ryder Care
   Charity to support people with disabilities and life-shortening diseases, their families, carers and friends, offing care at home or in residential centres. Information on its services and chain of shops.
   http://www.suerydercare.com/

» The Agoraphobia Support Network
   Provides information and advice for agoraphobics, as well as their friends and family. Self-help support network for members to exchange information and experiences, and gently help each other to cope.
   http://www.agoraphobia-support.co.uk

» The Mental Health Foundation
   Charity improving the lives of those with mental health problems or learning disabilities. Research, service development and information to increase understanding.
   http://www.mentalhealth.org.uk/

» Verity 'PCOS' Self Help Group
   For women whose lives are affected by Polycystic Ovary Syndrome. Events diary, facts-sheets, web-links and discussion forum.
   http://www.verity-pcos.org.uk/