Web Directory

» Basically FX
   Personal story of a family living with Fragile X Syndrome.
   http://basicallyfx.com

» Carolina Fragile X Project
   A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.
   http://www.fpg.unc.edu/~fx/

» Conquer Fragile X, Inc.
   Creating a virtual research center in Israel to find a cure.
   http://www.conquerfragilex.org

» FRAXA Research Foundation Home Page
   Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
   http://www.fraxa.org/

» Fragile X Association of Australia
   Information on this disease, medical aspects, education, references, contacts and what's new in Australia
   http://www.fragilex.org.au/

» Fragile X Association of Southern California
   Aims to promote public awareness, to support scientific research and to provide a forum for families of children with this disorder to meet and share their ideas, concerns and problems.
   http://www.fraxsocal.org/

» Fragile X Research Foundation of Canada
   Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join.
   http://www.fragilexcanada.ca/

» Genetics of Pregnancy Encyclopedia: Fragile X Syndrome
   Types, clinical signs, special properties of the Fragile X gene and genetic testing services available.
   http://www.geneticsofpregnancy.com/Encyclopedia/Fragile_X_syndrome.aspx?pid=15?pid=15&cid=94

» Kiran’s Story: Living with Fragile X
   A mother tells of her son's condition, the information she was given at the time of his diagnosis and the importance of sensitivity in tailoring genetic information and services to clients’ culture, knowledge and language level.
   http://www.tellingstories.nhs.uk/transcript.asp?id=33

» Living with Fragile X
   One family's account of raising 3 children with Fragile X.
   http://fragilex.ca

» Maryland Fragile X Resource Group
   A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.
   http://www.mdfragilex.org/

» Online Support Group
   Support group for Family's who are dealing with Fragile X Syndrome.
   http://groups.yahoo.com/group/fragilex/

» Pediatric Oncal
   Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations.
   http://www.pediatriconcall.com/fordoctor/diseasesandcondition/fragile_x.asp

» The National Fragile X Foundation
   Features information about the disease, its treatment, and inheritance.
   http://www.fragilex.org/