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Friedreich's Ataxia (13)

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This category in other languages:

Spanish

Sites:

» CajunHeart
Kim Bourg describes her life with the condition, and suggests strategies for coping with it in oneself or others. Includes details of symptoms and diagnosis.
http://cajunheart.tripod.com

» Friedreich Ataxia Research Association
Summarises recent progress in ataxia research and the search for better treatment.
http://www.fara.org.au/

http://www.ninds.nih.gov/disorders/friedreichs_ataxia/detail_friedreichs_ataxia.htm

» Friedreich's Ataxia Fact Sheet
A comprehensive resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke.
http://www.ninds.nih.gov/disorders/friedreichs_ataxia/detail_friedreichs_ataxia.htm

» Friedreich's Ataxia Parents Group
With advice for new parents on the the disease, and on how the parent might better cope emotionally.
http://www.fortnet.org/fapg/

» Friedreich's Ataxia Research Alliance
Non-profit organization dedicated to the pursuit of scientific research leading to treatments and a cure.
http://www.faresearchalliance.org/

» Friedreich's Ataxia and I
The author was diagnosed with Friedreich's Ataxia when eight years old. Read about the trials and triumphs.
http://www.ohbother.co.uk/25591.html

» Friedreichs Ataxia Society Ireland
Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues.
http://www.ataxia.ie/

http://www.geneclinics.org/profiles/friedreich/

» GeneClinics: Friedreich Ataxia
An in depth look at this disorder. Includes a summary, diagnosing, molecular genetic testing, clinical description and management.
http://www.geneclinics.org/profiles/friedreich/

» Matt's Mansion
Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel.
http://www.matthewlaw.co.uk/

http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ataxia,%20Friedreich's

» NORD: Friedreich's Ataxia
Offers the synonyms, a general discussion and further resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ataxia,%20Friedreich's

» Not Going Quietly
Comprehensive personal account of diagnosis, daily life, challenges, and international travel. Includes details of treatments, and a photograph gallery.
http://www.notgoingquietly.com

http://news.bbc.co.uk/2/hi/health/5257252.stm

» Patient loses right-to-food fight
The BBC reports that a man with Friedreich's ataxia has lost the last stage of his legal fight to insist on his being fed artificially in the final stages of his life.
http://news.bbc.co.uk/2/hi/health/5257252.stm

» Swiss Association of Friedreich Ataxia
Parents and friends of patients campaigning for better treatment for ataxics in Switzerland; also sharing news and information about the condition and current research.
http://www.achaf.org/

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Last Updated: 2006-08-18 00:08:01

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