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Fragile X Syndrome (13)

See Also:
Sites:

http://www.fpg.unc.edu/~fx/   » Carolina Fragile X Project Open in a new browser window
   A series of studies examining the impact of fragile X syndrome (FXS) on individuals, families and the agencies that serve them.
   http://www.fpg.unc.edu/~fx/

http://www.conquerfragilex.org   » Conquer Fragile X, Inc. Open in a new browser window
   Creating a virtual research center in Israel to find a cure.
   http://www.conquerfragilex.org

http://www.fraxa.org/   » FRAXA Research Foundation Home Page Open in a new browser window
   Non-profit organization run by parents. Fighting to find a cure for Fragile X Syndrome and helping Fragile X Family's.
   http://www.fraxa.org/

http://www.fragilex.org.au/   » Fragile X Association of Australia Open in a new browser window
   Information on this disease, medical aspects, education, references, contacts and what's new in Australia
   http://www.fragilex.org.au/

http://www.fraxsocal.org   » Fragile X Association of Southern California Open in a new browser window
   Fragile X Syndrome is the leading inherited cause of developmental disabilities and mental impairment worldwide. It affects 1 in 2,000 males and 1 in 4,000 females. It is estimated that 1 in 259 females are carries of the premutation.
   http://www.fraxsocal.org

http://www.fragile-x.ca/   » Fragile X Research Foundation of Canada Open in a new browser window
   Registered charity publishes a newsletter, invites applications for research grant, and explains how to donate or join.
   http://www.fragile-x.ca/

http://home.coqui.net/myrna/fragile.htm   » Fragile X Syndrome Open in a new browser window
   Single page on recognition of the condition in young children.
   http://home.coqui.net/myrna/fragile.htm

http://www.faseb.org/genetics/acmg/pol-16.htm   » Fragile X Syndrome - Diagnostic and Carrier Testing Open in a new browser window
   A Policy Statement from the American College of Medical Genetics.
   http://www.faseb.org/genetics/acmg/pol-16.htm

http://fragilex.ca   » Living with Fragile X Open in a new browser window
   One family's account of raising 3 children with Fragile X.
   http://fragilex.ca

http://www.mdfragilex.org/   » Maryland Fragile X Resource Group Open in a new browser window
   A community of families in and around the Washington-Baltimore metro area that have children affected by Fragile X Syndrome. Includes news, upcoming events, and resources.
   http://www.mdfragilex.org/

http://groups.yahoo.com/group/fragilex/   » Online Support Group Open in a new browser window
   Support group for Family's who are dealing with Fragile X Syndrome.
   http://groups.yahoo.com/group/fragilex/

http://www.pediatriconcall.com/fordoctor/diseasesandcondition/fragile_x.asp   » Pediatric Oncal Open in a new browser window
   Information presented about Fragile X Syndrome, including the diagnoses and clinical manifestations.
   http://www.pediatriconcall.com/fordoctor/diseasesandcondition/fragile_x.asp

http://www.fragilex.org/   » The National Fragile X Foundation Open in a new browser window
   Features information about the disease, its treatment, and inheritance.
   http://www.fragilex.org/


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Last Updated: 2006-05-12 09:00:51



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