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Ectodermal Dysplasia (6)

See Also:

Top/Health/Conditions and Diseases/Skin Disorders

Sites:

» Ectodermal Dysplasia Society
Information about the organization as well as the ED condition. Includes links, news articles and contact details.
http://www.ectodermaldysplasia.org/

http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal%20Dysplasias

» NORD: Ectodermal Dysplasias
Offers synonyms, a general discussion and resources.
http://www.rarediseases.org/search/rdbdetail_abstract.html?disname=Ectodermal%20Dysplasias

» National Foundation for Ectodermal Dysplasia
ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and a list of services.
http://www.nfed.org/

» The Andy Fund
Describes the health condition of a boy who was born with ectodermal dysplasia with immune deficiency caused by a mutation on the fourth part of the NEMO gene.
http://www.andy.org.mx

http://www.cafamily.org.uk/Direct/e14.html

» The CaF Directory
Information about the ectodermal dysplasia disorders, the inheritance patterns and pre-natal diagnosing.
http://www.cafamily.org.uk/Direct/e14.html

http://hometown.aol.com/charliein/ed/home.html

» The Ectodermal Dysplasia Mailing List
Includes instructions on joining the list, FAQs and links to further resources.
http://hometown.aol.com/charliein/ed/home.html

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Last Updated: 2004-05-26 01:05:07

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